Ehlers-Danlos syndromes are a group of inherited connective tissue disorders that are varied both in how they affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further or are more mobile than normal), skin hyperextensibility (skin that can be stretched further than normal) and tissue fragility (body tissues that are more fragile than normal).
The Ehlers-Danlos syndromes (EDS) are currently classified into thirteen subtypes. Each EDS subtype has its own set of clinical criteria that helps with diagnosis. There is a great deal of symptom overlap between the EDS subtypes and diagnosis should be made by a trained health care provider. Common signs and symptoms in those with EDS include hypermobile joints, chronic and early onset musculoskeletal pain, soft stretchy skin. Each subtype of EDS affects a certain type of connective tissue and can alter the function of other organs as well.
EDS and hypermobile spectrum disorders (HSD) are under diagnosed. It is not uncommon that a patient can try for 10-20 years to get an accurate diagnosis of EDS or HSD. It is important to be diagnosed by a trained healthcare provider, skilled in complex medical care, that will work with you to help you navigate the healthcare system and build a team of healthcare providers to help you live your best life.
For more information and resources on EDS and HSD: https://www.ehlers-danlos.com/